Nice to find this site, I’ve not heard of it before.
I have CFS/ME (I never know which one to use, so use both!) and have had it since I graduated college in 2006. I’ve only recently been diagnosed after 4-5 years of poking, which is a relief, oddly. I have a name for the demon inside me.
My experiences with CFS/ME on the NHS in the UK are varied. I have to tell the doctor what I want done, since all they gave me is a referral form for discounted exercise at the local gym. There’s a large waiting list for everything concerning the illness, from CBT to a dietician, so I have to do a lot on my own. I have no clue what supplements/changes in diet to do just yet, and am willing to do anything to get well. Exercise seems to be doing more harm then good (repetitive motions are a killer for me) but I will stick at it for another month and see what happens.
I had to move back in 2008 to my parents place because of the sick. I am grateful for my mum and dad for taking me in, but I’ve had eo Around that time I was at my lowest mentally and thought my symptoms were tied to that, but it turns out it’s the other way around.
You know, I can deal with the muscle pains and aches, the always getting a cold/virus that’s going around, even deal with the depression that comes with it, but I loathe the tiredness and the brainfog the most.
I feel like i’ve wasted my 20s and the important bit of my career because of it. This illness has stopped me from moving on; when I feel I get better and can do things like brave the public transport and airports to visit my boyfriend in Sweden, bam something happens and I’m sick and tired again, and need a few months to recover and get to a point where I can leave the house again.
I am trained as a fashion designer in college, and I want to do that. I am still interested, but my body won’t let me.
My life goals are, as such:
1) Get healthy enough to work and apply for work
2) Move to Sweden to be with my boyfriend
3) Get a dog
…that’s it. That’s all I want in life. Not asking for too much, am I?